Tuesday, September 13, 2016

Reno Sparks End Alzheimer's Walk in the New Paper.

The Reno Sparks End Alzheimer's made the local Reno Gazette Journal front page news on September 12th, 2016.  It was listed in the "Good News" section.  Looking forward to this years walk.  Happy to see our local news paper put the information in front of our community.  

If you still looking to sign up for walk or want a team to join or you want to make a donation, you can do so by clicking on this link.
http://act.alz.org/goto/remembermyphoto

Friday, September 2, 2016

Reno Sparks END Alzheimer's Walk 2016!


Join you END ALZ walk 2016!
 The Reno Sparks annual End Alzheimer's walk is right around the corner. Join your local community on Saturday September 24th at the Sparks Marina. 8am to 11am. Bring your family and friends. Create your own team or join mine.  If you can not come to walk, please consider making a monetary donation that is a 100% tax write off for your 2016 taxes.



Why join or come to END ALZ walk?


1.  Currently more than 5 million America.




2. It is the only disease that cannot be cured, prevented or slowed down.



3. Its the 6th leading cause of death.
The flower garden will bring you to tears..




4. It has become an national epidemic.








RIP Beverly Jean Charles 1929-2012

5. It killed more than Brest Cancer and Prostate Cancer combined for 2015


6. More than 15 million caregivers provide 18.1 billion hours of service that is not paid for.







7. In 2016 Alzheimer's will cost the nation $236 Billion




8. In 2050 Alzheimer's will cost the national $1Trillion


www.ALZ.org/FACTS






Monday, August 29, 2016

Gene Wilder Dies at 83 from Alzheimer's

Gene Wilder, Star of ‘Blazing Saddles’ and ‘Willy Wonka and the Chocolate Factory,’ Dies at 83


I have enjoyed watching this very creative actor on-screen. I was surprised to learn of his passing the other day and that he has passed from Alzheimer's. Adding him to the long list of celebrities and individuals that have died from this disease is so sad.  I found this image of him that shows him towards the end of his battle. Frail, sick, not the "Gene" everyone knew. This is one of the things that happens with the person. Drastic appearance change. Of course he was aging, but I can say from experience the change that happens from Alzheimer's is shocking, and if you have not experienced it yet, when you do it is a shock to the system, because it is something you don't expect to see or happen as part of the disease.  We focus on the mind.  The disease starts with the mind but then ravages the body.  RIP Gene Wilder. You will be missed Mr. Willy Wonka.



Gene Wilder in 1979. (Photo: Steve Wood/Rex/Shutterstock)
By Joel Ryan

Gene Wilder, the blue-eyed, frazzle-haired actor who elevated panic to a comic art form in frequent collaboration with Mel Brooks (The ProducersYoung Frankenstein) and Richard Pryor (Silver StreakStir Crazy), died on Sunday in Stamford, Conn., from complications from Alzheimer’s disease. His family confirmed the news to the AP. Wilder was 83.
Wilder perhaps is most fondly remembered as the captivating candy man and “Pure Imagination” crooner of Willy Wonka and the Chocolate Factory.
Blazing Saddles, helmed by Brooks and co-written by Brooks and Pryor, and Bonnie and Clyde are two other classics among Wilder’s roughly three dozen TV and film credits.
Though associated with funnymen Brooks and Pryor — he worked on three movies in all with Brooks and co-starred opposite Pryor in four — Wilder was quietly adamant that he was not a comic.
“I am really not — except in a comedy film,” Wilder said in 2013.
Maybe because others perceived him as an actor first as well, Wilder was the rare comedy star who was made welcome at the grownup table. He was twice nominated for an Oscar: a Best Supporting Actor nod for The Producers and a screenplay nod for his and Brooks’s Young Frankenstein.  
Wilder was previously married to Saturday Night Live star Gilda Radner, and in the wake of her death in 1989, he became a leading proponent of ovarian cancer screening and research. He’s survived by his fourth wife, Karen Webb.
Born Jerome Silberman on June 11, 1933, in Milwaukee, the future star became a comic actor almost from the start — and for a tragic reason: His mother suffered from heart disease, and since it was feared stress would kill her, laughter was demanded. Wilder, who went on to be one of the screen’s leading neurotics, would trace his own neuroses to the experience.
“My mother was suffering every day of her life, and what right did I have to be happy if she was suffering?” Wilder told the Washington Post in 2005. “So whenever I got happy about something, I felt the need to cut it off, and the only way to cut it off was to pray. ‘Forgive me, Lord.’ For what, I didn’t know.”
Wilder’s mother survived into his early 20s; she died, as Radner would decades later, of ovarian cancer. By the time of his mother’s death, Wilder was already a veteran actor, having been drawn to the stage as a teen. His early life took the familiar course of the draft-era young man: college (University of Iowa, then England’s Bristol Old Vic Theatre), then the Army, then back to civilian life. The former Jerome Silberman marked his return with a new name: Gene, depending on the source, chosen either in honor of a Thomas Wolfe character or his late mother, Jeanne; Wilder, for the author Thornton Wilder.
Wilder began to appear on the Broadway stage in the early 1960s. The 1963 play Mother Courage and Her Children paired him with Anne Bancroft and brought him into the orbit of her then-boyfriend Mel Brooks.
Four years later, in 1967, and a few months after he’d made his film debut in Bonnie and Clyde, Wilder starred in Brooks’s The Producers. (Because the future classic was a slow starter, to put it mildly, The Producers was not released in New York and Los Angeles until 1968.)
In Bonnie and Clyde and The Producers, Wilder played mild-mannered types driven to hyperventilation by bank robbers (the former) and a scheming Broadway impresario (the latter).  The parts arguably were his destiny: “When God saw Gene Wilder,” Brooks wasquoted as saying, “He said, ‘That is prey. And we’ll put him on Earth and everybody will chase him and have some fun.'”
In his mid-30s, and amid the “New Hollywood” revolution, Wilder was suddenly a leading man. He was not, however, suddenly everywhere, in everything.
“I was always very selective,” Wilder said of his movie choices. “No, selective isn’t the right word.”
“Egomaniacal,” he decided, was what he was looking for.
For the choosy Wilder, Willy Wonka, a musical rendering of the Roald Dahl children’s book about greed, chocolate, and one good kid, was just his fifth film. At the time of its release, in 1971, and for a few years after, it was portrayed as a flop because, box-office-wise, it was. For a time, even Wilder spoke of Willy Wonka as being one of the films that “ended” the first part of his movie career.
“I started all over again with Woody Allen in Everything You Wanted to Know About Sex,” Wilder said in 1976.
True enough, Wilder was a comic star anew for playing a doctor who falls in love with a sheep in Allen’s anthology. Then he reteamed with Brooks for Blazing Saddles andYoung Frankenstein, both released in 1974, and he was a comic superstar.
While Brooks wrote and directed the Old West spoof Blazing SaddlesYoung Frankenstein was Wilder’s baby. He started with the title and worked it into a full-blown, homage/parody of the black-and-white Universal horror classics. Brooks would end up directing that movie too, as well as rewriting the script with Wilder.
“While we were making Blazing Saddles, we worked on the second draft of Young Frankenstein,” Wilder recalled.  
Wilder and Brooks never collaborated in any significant way after Young Frankenstein. There was no falling out; there were just different styles.
“Our ideas of comedy are quite different,” Wilder told UPI in 1977. “Mel likes the fall-down stuff. I favor romantic humor.”
Wilder began directing himself, in 1975’s The Adventure of Sherlock Holmes’ Smarter Brother, and 1977’s The World’s Greatest Lover, and found a new comedy partner in Pryor, starting with the 1976 heist comedy Silver Streak.
“At the end of a take,” Wilder recounted to the New York Daily News of his first day shooting with Pryor, “we burst into the same song at the same time. … From then on, we began trusting each other in a way I haven’t experienced with any actor.”  
Silver Streak was a hit, as was the prison-set, Sidney Poitier-directed Stir Crazy, released in 1980, months after Pryor’s life- and career-changing self-immolation suicide attempt.
It would be almost a decade before Wilder and Pryor teamed up again, in 1989’s See No Evil, Hear No Evil. In the interim, Wilder had acquired another screen partner: Radner.
The two met on the 1982 crime comedy Hanky Panky, also directed by Poitier. Wilder and Radner married in 1984 and went on to work together in 1984’s The Woman in Redand 1986’s Haunted Honeymoon, both directed by Wilder.
Then Radner began to not feel right — it would take doctors months to deliver the grim diagnosis: stage 4 ovarian cancer. For nearly three years, until her death at age 42 in 1989, Radner was in and out of treatment, and in and out of hospitals. “Gilda went through the tortures of the damned, and at the end, I felt robbed,” Wilder told People in 1991. “All along I kept hearing Gilda saying, ‘Don’t just sit there, dummy, do something!'”
Wilder would go on to testify before Congress about the importance of screenings and knowledge of family health history and co-found Gilda’s Club, a cancer-support organization that started (and remains) in New York City and spawned numerous chapters.  
Wilder, who was married and divorced twice before his union to Radner, wed Webb, a hearing specialist he’d worked with on Hear No Evil, See No Evil, in 1991.
Wilder would work in only a handful more TV and film projects, including one last comedy with Pryor, 1991’s Another You. The movie was panned and, worse, showed Pryor in marked physical decline from the multiple sclerosis that would claim him in 2005.
In 1999, Wilder was diagnosed with lymphoma, but by the time he went public with his health, in 2000, he was already said to be in remission.
Wilder began a low-key retirement after winning a Primetime Emmy for a 2003 guest-starring turn on TV’s Will & Grace.
Away from Hollywood, Wilder said he enjoyed his life, his wife, his writing, and no longer having to deal with the business of show business.
Along the way, Wilder’s old flop Willy Wonka became considered a children’s fantasy classic. The 2005 Johnny Depp-Tim Burton take, Charlie and the Chocolate Factory, of which Wilder was famously no fan, served only to make the older version ever more relevant.
In the end, Wilder, who could do panic like few others onscreen, sounded serene.  
“I’ve become pretty philosophical about a lot of things, including death. It doesn’t get to me,” Wilder told London’s Telegraph in 2005. “At this point, the way I feel, if it’s over, it’s over.”

Friday, August 19, 2016

Alzheimer's Forum 2016!

Alzheimer’s Forum 2016        By: Brooke. M. Westlake
Team NEVADA at the annual ALZ Forum 2016

Cathy & I headed to ALZ Forum 2016




















I have never been to an Alzheimer’s forum. The first time I heard about this was through my Nevada Policy Committee Team.   I am so glad that I went to Forum in 2016! It was very educational, and I was able to connect with others that had experience with Alzheimer’s/dementia.
Team Nevada! Representing Nevada for the ALZ Forum 2016







My journey for forum all started when I happened to be on the same flight as my awesome teammate Cathy.  Cathy and I were able to spend time getting to know one another.  I got to hear her personal story about her mother and how Alzheimer's has effected her and her family.  Every time I heard a story about Alzheimer's, it reminded me of why I volunteer and do what I do for the cause.

Monday April 4th I attended the “First Timers” program for forum.  I listened to speakers, John Funderburk, The Director of Advocacy for the Alzheimer’s Association, Matthew Baumgart, and The Senior Director of Public Policy for the Alzheimer’s Association. Last but not least, the ending speaker Stephanie Vance, 25 year veteran of the Washington D.C. political scene. I enjoyed her the best.



     
The evening event had speaker Bob Marino, Member at large of the Alzheimer’s Impact Movement (AIM).  http://alzimpact.org/wp-content/uploads/2015/01/AIM-Factsheet-2015-web.pdf

Nancy Nelson, Author Blue River Apple.
She is living with Alzheimer's.
www.blueriverapple.com
“State Roll Call” was one my favorite highlights.  Each State has an individual or individuals that came up to the microphone in front of a room filled with 2,500 people. They introduce themselves, shared what their personal connection is or was with the Alzheimer's, and then provide a fact or something interesting that their State had done the prior year in regards to Alzheimer’s.
The two most memorable “State Roll Calls” were Brandon Barkwell “Brandon Barkwell, 15, has attended two Advocacy Forums. His father, Brian, was diagnosed with younger-onset Alzheimer's in his late ‘40s, when Brandon was 5.” Being a mom of a son and having experience with Alzheimer’s, my heart sank when Brandon spoke about his dad. I felt so broken for him. Later on, at forum I saw him and I had to give him a hug and commend him on for his courage.
Team Nevada-State Roll Call!




The other memorable “State Roll Call” was a gentleman around 40s or early 50s. I can not recall his name.  I believe he was representing the State of Arizona.   I can recall crying as he spoke. He was living with Alzheimer’s. He struggled with his speech and his wife was there to guide.  She pointed out the words on the paper one by one. At the end of his roll call the whole audience stood up and cheered for him.
Young Advocates Networking Group Photo.
To tie up the evening I got to have drinks with my Nevada team and then I attended the Young Advocates Networking program.  


This was great, because I got to meet individuals my age that all have or had a personal connections to Alzheimer’s.  I especially enjoyed meeting Brent Oldham, YPAAL Advocacy Chair for Lansing county @YPAALMichigan and Terry Steetman, Co-Chair /Co-Founder of YPAAL of Lansing county.  These two gentleman were also a hoot to hang out with.  I am so proud that they are both bringing awareness to Alzheimer’s
Fellow sister queen, Christine Williamson, Miss Mountain Empire, for MAO-Miss Tennessee 2016






Jessica Rothhaar, Manager, Policy and Advocacy, Alzheimer's Association of Northern California and Northern Nevada. Demonstrating the "Ask"


















Tuesday April 5th was a very busy day.  Presentations were provided on this day as well as break out training “Ask” sessions. The first meeting was for AIM. AIM stands for the Alzheimer’s Impact Movement. It was put together separate from the Alzheimer’s association to support both political parties who are advocates for Alzheimer’s.  This was followed up by a General session on Capitol Hill, followed by a group lunch. We had guest speaker Charlie Cook, political analyst, commentator and publisher of The Cook Political Report.  He was very comical and I enjoyed listening to him; however my highlight from my group lunch was meeting Nancy Nelson www.BlueRiverApple.com She and I had a lovely conversation. When I asked her about her connection with Alzheimer’s she looked at me and said “I have been diagnosed with Alzheimer’s.”  Meeting her was defiantly a highlight because having an individual speak on their own experience with the disease will help break stigmas. I firmly believe that speaking out on this disease is powerful, and lots of caregivers have come forward to speak up and share their story, but the most powerful way to get the message across to the world is to have an individual who has the disease talk about it. It will break your heart, but it will also inspire you.
Pamela Brown, CNN Justice Correspondent & I
 Our afternoon was filled with our second training for “Advocacy for the Federal Ask” followed by Stat Caucuses. Then it was off to get ready for the national dinner.


Pamela Brown, CNN Justice Correspondent














National Alzheimer’s Dinner was a real delight. The Emcee was Pamela Brown, CNN’s Justice Correspondent covering law enforcement.  There were guest speakers from caregivers to individuals who shared their story in several minutes with their loved ones photo on two giant projectors in the room. These individuals brought more personal experience to the cause. Each story unique. Each background different.  I want to commend the Alzheimer’s Association for having a wide range of individuals. We had a same sex couple speak, older gentleman, younger women. The bottom line is that Alzheimer’s does not discriminate against age, sex, religion, color, or political status.
National Stage for the ALZ Dinner
Terry Steetman, Co-Chair /Co-Founder of YPAAL of Lansing county Brent Oldham, YPAAL Advocacy Chair for Lansing county & I.
 We also enjoyed Speakers: Actress and Author, Kimberly Williams-Paisley, Harry Johns, President and Chief Executive Office of the Alzheimer’s Association, Barb Meehan, Alzheimer’s Advocate, Senator Roy Blunt, Chairman of the Senate Appropriations Subcommittee on Labor, Health and Human Services, Joan Uronie Alzheimer’s Association National board of directors and Advisory Group Member, Beth Kallmyer, Alzheimer’s’ Association Vice President of Constituent Services, and Patrick Peyton, Alzheimer’s Impact Movement and Alzheimer’s Association Board of Directors member.
The dinner concluded with several awards. 
The Alzheimer's Association Champion Award, This award honors an individual, organization or company whose actions have promoted greater understanding of Alzheimer's disease and its effects on diagnosed individuals, families and caregivers.
The Alzheimer's Association Outstanding Advocate of the Year Award
Actress and Author, Kimberly Williams-Paisley
Award Winners' Kimberly Williams Paisley & her father
This award is presented annually to an extraordinary Alzheimer's advocate who has shown outstanding leadership. 





The Alzheimer's Impact Movement Humanitarian of the Year Award
The Humanitarian Award is an annual award bestowed upon a public official that has made a significant policy contribution to advancements in research and enhanced care and support for people with Alzheimer's disease.














Wednesday April 6th- Capital Hill Day!
Senate Minority Leader, Harry Reid & I.
Meeting one with Congressman Mark Amodei's office
Meeting two with  Senator Dean Heller's office
Team Nevada! Cathy, Jacob & I waiting to go
into Amodei's office.
Team Nevada- Washington D.C. Alzheimer's forum 2016
Our last meeting with Senator Harry Reid's office was by far our most amazing ans successful meeting! He agreed to sponsor the HOPE act, and typically he does not sponsor bills. But they thing was, he understood the need. As we sat at the meeting table, Senator Reid told us about a friend of his that had passed away from Alzheimer's. He shared with us his last time seeing his friend and how sad he was that his friend did not know who he was. He understood the disease and knew that this is a national crisis. Its not a political crisis, race crisis, age crisis, man or woman crisis, its an everyone crisis as we continue to deal with the high medical costs.  We are all affected by this disease. 












Tuesday, June 28, 2016

legendary women's basketball coach,Pat Summitt,dies at 64

By Joshua Berlinger and AJ Willingham, CNN
(CNN)Pat Summitt, who built the University of Tennessee's Lady Volunteers into a perennial power on the way to becoming the winningest coach in the history of major college basketball, died Tuesday.
Her death came five years after she was diagnosed with Alzheimer's Disease. She was 64.
    Summitt battled the disease with "fierce determination just as she did with every opponent she ever faced," her son, Tyler Summitt, said.
    "Even though it's incredibly difficult to come to terms that she is no longer with us, we can all find peace in knowing she no longer carries the heavy burden of this disease," Tyler Summitt said.
    n her 38 years at Tennessee, Summitt won eight national titles and 1,098 games -- the most by any Division 1 basketball coach, male or female. Her teams made an unprecedented 31 consecutive appearances in the NCAA Tournament.
    Beyond the wins and the statistics, Summitt had a profound impact on women's college athletics.
    When she became head coach of the Lady Vols in 1974 at the age of 22 -- barely older than some of her players -- the NCAA did not even formally recognize women's basketball. Summitt had to drive the team van to road games herself.
    As the wins and the championships piled up, Summitt's astonishing achievements commanded national attention and helped usher women's basketball into the spotlight.
    "She'll be remembered as the all-time winningest D-1 basketball coach in NCAA history, but she was more than a coach to so many -- she was a hero and a mentor, especially to me, her family, her friends, her Tennessee Lady Volunteer staff and the 161 Lady Vol student-athletes she coached during her 38-year tenure," Tyler Summitt said.
    Current Lady Vols Coach Holly Warlick credited Summitt with playing a "very significant role in molding me into the person I am."
    "Pat gave me strength and courage to face anything," Warlick said. "She was driven to perfection and always remained true to her standards. That meant doing things the right way, no matter what. In my eyes, there's never been anyone better than Pat Summitt."
    Summitt's impressive coaching record earned her a spot in the Basketball Hall of Fame in 2000.
    In 2011, she announced she was diagnosed with early onset Alzheimer's, but vowed to keep coaching.
    "This is not a pity party," she said. "We're not going to sit here and feel sorry for Pat Summitt."
    She stayed on for one more year, securing the Lady Vols their 16th SEC Championship under her leadership before retiring. But she didn't step away from the sport she loved.
    She retired in 2012, eight months after her diagnosis.
    "If anyone asks, you can find me observing practice or in my office," Summitt said at the time. "Coaching is the great passion of my life, and the job to me has always been an opportunity to work with our student athletes and help them discover what they want. I will continue to make them my passion."

    More than a coach, more than a celebrity

    Although she was notoriously tough on the sidelines, Summitt's legacy extended far beyond the game.
    "We learned about what it takes to be a leader, what it takes to be a great woman, what it takes to be a great lady, what it takes to have character, what it takes to have poise," said former Lady Vol and WNBA star Tamika Catchings in 2013.
    Summitt's concern for her players extended to the classroom as well. All of the athletes she coached who completed their eligibility went on to graduate from the university.
    Summitt's success made her a legend at the University of Tennessee, even to the school's other celebrated heroes. In 2012, Tennessee alum and NFL quarterback Peyton Manning presented Summitt with the Arthur Ashe Courage Award at ESPN's ESPY Awards.
    "I just always appreciated Pat's friendship and support," Manning said Tuesday. "I was always impressed with how all of her former players spoke about her. You speak to people like Tamika Catchings or Chamique Holdsclaw, and they just talk about the role that Pat played in all their lives on and off the court. You can just tell the impact that she had on those players."
    In 2012, President Barack Obama awarded Summitt the Presidential Medal of Freedom, the nation's highest civilian honor.
    On Tuesday, he called her a patriot, a "proud Tennessean" and an unparalleled winner.
    "Her legacy, however, is measured much more by the generations of young women and men who admired Pat's intense competitiveness and character, and as a result found in themselves the confidence to practice hard, play harder, and live with courage on and off the court," Obama said.
    "For four decades, she outworked her rivals, made winning an attitude, loved her players like family, and became a role model to millions of Americans, including our two daughters," Obama said.

    Vols Nation in mourning

    Summitt remained a pillar of the University of Tennessee community and culture until her death. When news of her illness became public in 2012, "We Back Pat" became a rallying cry for thousands upon thousands of students and supporters who attended games bearing t-shirts and signs with the slogan.
    As news of her death spread, reaction began to pour in from Tennessee and around the country.
    "We have lost a legend," NCAA President Mark Emmert said Tuesday. "Pat Summitt's courage and tenacity on and off the court should be commended and emulated. Her commitment to excellence and developing young people leaves a powerful imprint on college basketball, higher education, and all individuals who have sought to excel in sports and life."
    Tennessee issued a statement calling Summit "a global icon who transcended sports and spent her entire life making a difference in other people's lives."
    "Pat was so much more than a Hall of Fame coach; she was a mother, mentor, leader, friend, humanitarian and inspiration to so many," the school said. "Her legacy will live on through the countless people she touched throughout her career."
    Numerous coaches, players and journalists also offered respects.

    Monday, June 6, 2016

    Making Alzheimer's History!

    I am thrilled! I got this email that stated that the senate has approved to put more money into Alzheimer's research! My team, the Ambassador's and the volunteers from the Alzheimer's organization are so very happy to hear this news! Our hard work is paying off!

    Dear Brooke,
    As an advocate in the fight to end Alzheimer's, you understand how critical research funding is to the Alzheimer’s Association’s commitment stop this deadly disease as soon as possible. That is why it is my great pleasure to share very encouraging news with you.
    This morning, the Senate Labor-HHS Appropriations Subcommittee informed us that they will propose our requested $400 million increase in Alzheimer’s research funding for FY2017. If approved and signed into law, this new funding would be in addition to the historic $350 million increase signed into law several months ago at the close of 2015.
    View the Association’s statement on today’s important news. 
    Thank you for all you have done to make today’s news possible. 
    Sincerely,

    Robert Egge
    Alzheimer’s Association Chief Public Policy Officer | Executive Vice President, Government Affairs